I owe a lot to a good photograph filter and, more so, my toddler who spares me along. But really, life has become a lot tougher than I ever imagined.
You may, or more likely may not, have noticed that I haven’t written any blogs in a little while! (And even then, it was more of a photo-log of our new master bedroom). But there is reason behind it.
Since May 2017, I have been suffering with my health A LOT.
It took until March 2018 to get a real diagnosis, and even then, I didn’t know whether to cry at the results or jump for joy to finally know that I wasn’t going crazy!
So, the truth is, I have a chronic illness called Myalgic Encephalomyelitis (or M.E.) for short – along with Polycystic Ovary Syndrome (PCOS).
Yes, the pun in my title was intended. I bet you though that this was going to be based around that (rather good!) song from The Greatest Showman? Well, not entirely. This is me, and this is M.E.
M.E. (or CFS) is a chronic illness causing severe fatigue and other complications.
If you’re really interested (probably not!), there is information on the NHS Website.
This isn’t a ‘feel sorry for me’ post. This is a ‘I’m still here, and cannot wait to get blogging again’.
I’m undergoing treatment for my condition and learning to deal with it too. But it really goes to show, don’t judge what you can’t see going on behind closed doors. I have posted about this before, which happened to be around the time of my diagnosis. Because I remember someone saying to me that I had the ‘perfect life’ – but, to me, it wasn’t perfect when I could barely lift my daughter to carry her, I couldn’t go from 8am-6pm without having to have a sleep, spending nights lying awake – nauseous and vomiting, not being able to do anything too strenuous without nearly blacking out. Simple things like showering become a mammoth task to complete!
At first, I felt embarrassed and humiliated by my diagnosis. But, having talked about it with a few people, and started ‘treatment’, I realise that life will throw these curveballs and it is nothing to be embarrassed about. If people want to judge me or not believe me, fine!
“We aren’t asking for sympathy, nor for you to understand everything we go through on a daily basis but the one thing that we do ask is that you BELIEVE us and don’t judge. A simple text to ask ‘how are you feeling today?’ or a quick visit when we aren’t well enough to go out and do something means the absolute world.”